Researchers can ask their subjects to approve or disapprove of a variety of options or levels for data access.
- No restrictions placed. This level allows access over the web to both transcripts and media without pseudonymization.
- Pseudonymization of last names and addresses. Participant's last names and information regarding addresses or locations will be replaced by pseudonyms in the transcripts. This preserves the bulk of the interaction and requires only a bit of work to replace a few words.
- Fuller pseudonymization. In addition to basic pseudonymization, we can also pseudonymize first names. Because first names cannot uniquely identify an individual, this is usually not important in terms of maintaining privacy. However, it may be required in some cases.
- Audio bleeping. In addition to pseudonymization, participants can request either partial or full audio bleeping of pseudonyms. Currently, only two TalkBank datasets use audio bleeping (Deuchar and SBCSAE)
- Video blurring. In some cases, video blurring may be requested. Blurring is technically quite difficult to implement and highly disruptive of the data. Therefore, it is usually better to protect sensitive video data using other methods such as passwords, described below. Currently, there are no TalkBank datasets that use video blurring.
- Password protection. Access to data may be restricted to certain individuals or groups of individuals. It is relatively easy to implement password protection. However, protection of this sort tends to limit easy access and availability. Currently, only the Aphasia data in TalkBank are password protected.
- Non-disclosure form. For cases requiring extreme protection, password protection can be accompanied by signing of a non-disclosure form. This form prohibits the publication of any reference that identifies individuals. No copying of the data is allowed. No TalkBank data are subject to this restriction.
- Controlled viewing. This level of access requires that data can only be viewed in controlled conditions under direct on-line supervision. This level is needed for data of a highly personal or revealing nature. This level has been used in the past for the viewing of material from psychiatric interviews.
- Archiving only: These data would not be viewable over the web, but would be archived in the format of the general system for offline use. This level allows the investigator to use the tools of the analysis system without actually adding the data to the online database.
Some of these options can be combined. For example, options 2, 4 and 6 could be combined. However, one might think that invocation of option 6 would make options 2 and 4 irrelevant in terms of protection of privacy. Options 5 and 9 could theoretically be combined, but one would wonder why anyone would go to the work of video blurring if the data were not being made viewable.
None of these options specify a time at which the data will be destroyed. There are no plans for data destruction for TalkBank data.