TTP Corpus

Theresa Coles Population Health Sciences Duke University School of Medicine Theresa.Coles@Duke.edu

Toyosi Onwuemene, M.D., M.S. Hematology Duke University School of Medicine toyosi.onwuemene@duke.edu

Jamila Minga, Ph.D., CCC-SLP Head and Neck Surgery & Communication Sciences, Neurology Duke University School of Medicine jamila.minga@duke.edu

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Citation information

In accordance with TalkBank rules, any use of data from this corpus must be accompanied by at least one corpus reference. Additionally, please acknowledge this NIH grant in any publications: THINK-TTP, 1R21TR004694-01A1.

Project Description

The NIH grant funding this work is entitled A Clinical Trial Readiness Study of Patient Reported Outcome Measures in Thrombotic Thrombocytopenic Purpura (TTP).

Immune thrombotic thrombocytopenic purpura (TTP) survivors consistently report cognitive dysfunction as the most impactful health-related quality of life issue, yet no measures have been identified as fit-for-purpose for clinical trials. Our study will establish reliable, valid, and responsive cognitive function assessments tailored for use in TTP trials.

Transcripts include one-on-one in-depth concept elicitation interviews of people with iTTP and their observers. In addition, they include these RHDBank protocol tasks: a personal narrative about a TTP, Cookie Theft picture description, Cat Rescue pictures description, and Unfamiliar Object task.

Additional contributors include these individuals:
Elizabeth Cieza
Jada Green, MPH
Fiorella Guerrero Calle, Ph.D.
Kristin Bryne
Olivia Fernandez
Laura Mkumba, MSc
Dana Thompson, PhD
Brian Adkins
Benjamin Tillman