This page explains the principles involved in securing IRB permission for data sharing. If you already have this clearance and are ready to contribute your data to TalkBank (CHILDES, AphasiaBank, SLABank, etc.), you should follow these instructions on how to actually submit your data.

IRB Principles: TalkBank members who are interested in contributing their data need to make sure that they obtain IRB approval for their study, along with informed consent from individual participants. There are no standard forms for IRB applications, since every University or Institute creates their own forms, procedures, and templates. For the purposes of contributing to TalkBank, all that is really necessary is that you determine the appropriate level of access to the data that participants are being asked to grant. To help you determine this, we have created an OPTIONS summary for the 9 options that are available. We would recommend that you ask participants to permit unrestricted access with pseudonymization of the transcripts (Options 1 and 2). You should include on your form the fact that participants always have the right to request that parts or all of the data in which they participate be removed from TalkBank at any time.

IRB Examples for AphasiaBank: Research with subjects with disabilities requires additional access restriction, such as password protection. It may also require more complete IRB documentation. In this regard, researchers working with the AphasiaBank protocol will find these additional IRB materials useful:

  1. A generic informed consent form in the CMU format.
  2. Approved AphasiaBank consent forms from CMU and Emerson.
  3. An informed consent form approved at Kansas (Susan Jackson) for Mandarin speakers in the AphasiaBank project.
  4. An approved full IRB AphasiaBank application from the University of South Florida.
  5. An approved full IRB AphasiaBank application from the University of Kansas and related documents:
  6. Four picture-based consent forms for people with aphasia: a very simple one, one from USF, one from the Adler Center, and one specifically for use with the Famous People Protocol.